down syndrome 'ohana of hawaii

A poignant collection of personal stories by mothers describing the gifts that Down syndrome has brought into their lives. Edited by Kathryn Lynard Soper  Foreword by Martha Sears, RN2008 National Parenting Publications Awards (NAPPA): Gold Award
2008 Mom's Choice Awards: Silver Recipient, Special & Exceptional Needs
2008 Nautilus Award: Silver Winner, Memoir/Personal Growth

Down Syndrome: What You CAN Do is designed to give parents, friends, families, and professionals accurate and up-to-date information about Down syndrome. Information in the book is written by doctors, parents, professionals & individuals with Down syndrome. This book is written with the idea that many families would have benefited from a book like this when their child was diagnosed with Down syndrome.
By Qadoshyah Fish

A great online resources to buy books about Down Syndrome is at the Woodbine House website.  It has every book you may be looking for. The button will take you directly to their website! Happy shopping!

LOCAL RESOURCES

Hawaii Easter Seals 
Early Intervention System, HI Dept of Health
Special Olympics Hawaii    
Special Olympics Hawaii - Young Athletes
Heartbeat - 24-VII Danceforce
The ARC in Hawaii

Abilities Unlimted
Special Needs Trusts & Planning - Law Offices of Stephen B. Yim
Assistive Technology Resource Centers of Hawai'i
Sprouts Therapy
Na Maka O Pu'uwai Aloha - Special Ladies Hula

Kardiac Kids


ADVOCACY & CONFLICT RESOLUTION

Learning Disability Center of Hawai'i (LDAH)
Hawai'i Disability Rights Center (HDRC)
Legal Aide Society of Hawaii


SCHOOL & PROGRAMS
Keiki O Ka 'Aina - Poli's Place
Head Start
Hawaii Dept. of Education - Special Education


INFORMATION & RESOURCES
Exceptional Family Members Program (EFMP Marine Corps) 

Exceptional Family Members Program (EFMP Navy) 

Exceptional Family Members Program (EFMP Army) 
Special Parent Information Network (SPIN)


NATIONAL RESOURCES

National Down Syndrome Congress 
National Down Syndrome Society 

DS Health

Noah's Dad

Boston Children's Hospital - DS Program
Specs4Us



INTERNATIONAL RESOURCES

LOVE Junx, Japan
Edmonton Down Syndrome Society, Canada
Star Performers & Twinkle Star Dance Studios, Australia
International Mosaic Down Syndrome Assoc. 
International Down Syndrome Coalition
Global Down Syndrome Foundation

HEALTH RESOURCES​​

Comedian, singer, actor and pastor Dan Kulp may be best known as the lead singer for the popular rock band, The Dig Project, but he is making some serious waves in the literary world with the release of his first book, the alternately humorous, poignant and profound Confounding The Wise from WordCrafts Press.

Kulp is brother to four siblings who have Down syndrome, three of whom were adopted. He and his wife Elizabeth are the proud parents of three adopted children, two from China and one from Ukraine, who have special needs--including one with the extra chromosome "We have been told that our son Simon is the first child adopted out of China to the U.S. who has Down syndrome," Kulp says. During the 1970s, PBS and Newsweek Magazine did feature stories on the Kulp Family which aired internationally.

resources

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