Down Syndrome 'Ohana of Hawai'i 
"It takes a village to raise a child" 
"Ora na azu nwa"

-African proverb
Resources

New&Expectant Parent Outreach Program

Congratulations on birth of your baby!


Aloha New Parents,
It’s normal to be nervous about what lies ahead, but remember that Down syndrome is a condition your baby has, it is not who your baby is. In fact, your baby is more like other infants than they are different, they still need to be fed, held and most importantly, loved!  With the whirlwind of emotions, you should know that you are not alone!  As a new/expectant parent to a child with Down syndrome, we are here to provide friendship, support, resources and information.

Through our New Family Outreach Program, you can expect to receive our New Parent Packet, full with information that will help answer questions, & provide valuable resources; you will also receive a small gift from DSOH to your family!

Please call Ann at 808-843-2502 or email Candice at can808@yahoo.com. We hope that your family will become members with DSOH, a safe, nurturing place where all questions and concerns are welcome, and a place where even the smallest accomplishments can be shared and celebrated! 

If you know of a new family expecting a baby with Down syndrome, please call us today! We can do hospital or home visits, and even love bringing our own keiki to meet your family!  We are here to kokua!

Aloha and Mahalo,
The DS 'Ohana

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Resources

LOCAL 

Support Groups
Down Syndrome 'Ohana of Hawai'i 
Hawaii Down Syndrome Congress 
Kardiac Kids
Community Children's Council Parent Support Groups

Community Resources
Hawaii Easter Seals 
Early Intervention System, HI Dept of Health
Special Olympics Hawaii
Special Olympics Hawaii - Young Athletes
Manawale'a Riding Center (Horse Therapy)
Heartbeat - 24-VII Danceforce
The ARC in Hawaii
Special Needs Trusts & Planning - Law Offices of Stephen B. Yim
Assistive Technology Resource Centers of Hawai'i
Sprouts Therapy

Na Maka O Pu'uwai Aloha - Special Ladies Hula


Advocacy & Conflict Resolution
Learning Disability Center of Hawai'i (LDAH)
Hawai'i Disability Rights Center (HDRC)
Legal Aide Society of Hawaii


Schools & Programs
Keiki O Ka 'Aina - Poli's Place
Head Start
Hawaii Dept. of Education - Special Education

Information & Referral

Exceptional Family Members Program (EFMP) 
Hawaii Keiki Information Service System (H-KISS)
Special Parent Information Network (SPIN)


Friends of DSOH
Project Focus Hawaii 
Hale KeAloha

Tucker Hirsch
Gunstock Ranch

NATIONAL RESOURCES

National Down Syndrome Congress 
National Down Syndrome Society 
International Mosaic Down Syndrome Assoc
Down Syndrome Sites
No Child Left Behind
Specs4Us


INTERNATIONAL RESOURCES

LOVE Junx, Japan
Edmonton Down Syndrome Society, Canada
Star Performers & Twinkle Star Dance Studios, Australia
Down Syndrome Sites



Recommended Read

A great online resources to buy books about Down Syndrome is at the Woodbine House website.  It has every book you may be looking for. The link below will take you directly there! Happy shopping!
http://www.woodbinehouse.com/Down-Syndrome.29.0.0.2.htm
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A poignant collection of personal stories by mothers describing the gifts that Down syndrome has brought into their lives. Edited by Kathryn Lynard Soper  Foreword by Martha Sears, RN
2008 National Parenting Publications Awards (NAPPA): Gold Award

2008 Mom's Choice Awards: Silver Recipient, Special & Exceptional Needs

2008 Nautilus Award: Silver Winner, Memoir/Personal Growth

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Down Syndrome: What You CAN Do is designed to give parents, friends, families, and professionals accurate and up-to-date information about Down syndrome. Information in the book is written by doctors, parents, professionals & individuals with Down syndrome. This book is written with the idea that many families would have benefited from a book like this when their child was diagnosed with Down syndrome.
By Qadoshyah Fish


Comedian, singer, actor and pastor Dan Kulp may be best known as the lead singer for the popular rock band, The Dig Project, but he is making some serious waves in the literary world with the release of his first book, the alternately humorous, poignant and profound Confounding The Wise from WordCrafts Press.

Kulp is brother to four siblings who have Down syndrome, three of whom were adopted. He and his wife Elizabeth are the proud parents of three adopted children, two from China and one from Ukraine, who have special needs--including one with the extra chromosome "We have been told that our son Simon is the first child adopted out of China to the U.S. who has Down syndrome," Kulp says. During the 1970s, PBS and Newsweek Magazine did feature stories on the Kulp Family which aired internationally.

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